Gallery
7th Dianalund International Conference, May 6–8, 2026, Køge, Denmark
We had the pleasure of participating in the 7th Dianalund International Conference, held from May 6 to 8, 2026 in Køge, Denmark. The event, organized by the Filadelfia Epilepsy Center, was entirely dedicated to Developmental and Epileptic Encephalopathies (DEE) and brought together families, researchers, clinicians, and patient organizations from around the world to share scientific updates, clinical experiences, and future perspectives in research on developmental and epileptic encephalopathies, including the SLC6A1 mutation.
SLC6A1 Switzerland Annual Meeting, Aparthotel Al Lago, Locarno, March 8, 2026
To watch the videos, view the meeting slides, and read the presentation materials, please visit the Symposiums and Meetings page.
On March 8, 2026, the first annual meeting of SLC6A1 Switzerland took place—an important opportunity for exchange and connection among families, specialists, supporters, the pharmaceutical industry, and institutions—with the participation of the following speakers:
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Dr. med. Thomas Dorn – Board member of the Swiss Society for Health in Intellectual Disability (SSHID)
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Prof. Elena Bossi – Associate Professor of Physiology, University of Insubria, Varese (Italy)
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Raffaele De Rosa – State Councillor, Department of Health and Social Affairs, Canton of Ticino
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Tiziana Romanazzi – Researcher in Physiology, University of Insubria, Varese (Italy)
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Dr. Georgia Ramantani – Senior Physician, Neuropediatrics (EEG/Epilepsy), University Children’s Hospital Zurich
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Dr. Ganna Balagura – Physician and researcher, IRCCS Istituto Giannina Gaslini, Genoa (Italy)
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Cosimo Mazzotta – President, ATGABBES
ROUND TABLE 36: FLAMINGO BOAT PARTY – CHARITY EVENT IN SUPPORT OF SLC6A1 SWITZERLAND, AUGUST 30th, 2025
On August 30th, 2025, SLC6A1 Switzerland was hosted by RT36 for a special evening dedicated to solidarity. All proceeds from the event were fully donated in support of SLC6A1 Switzerland.
“Flamingo Boat Party” donation Ceremony, Organized by Round Table 36 in Support of SLC6A1 Switzerland
Locarno, 9 December 2025
Present: Kevin Barra (Vice President, Round Table 36), Michelle Aldini Parise (President, SLC6A1 Switzerland), Giusy Parackal (Auditor, SLC6A1 Switzerland), Otello Parise (Secretary, SLC6A1 Switzerland), Davide Cossi (Secretary, Round Table 36), Manuel Bolliger (President, Round Table 36)
Budapest, N1C Annual Meeting, October 18th, 2025 and Oligo Meeting, October 19th-22nd, 2025
The Budapest event brought together two international meetings focused on developing new therapies for rare diseases.
On October 18, 2025, the N-of-1 Annual Meeting focused on highly personalized therapies designed for a single patient, using antisense oligonucleotides (ASOs) tailored to that individual’s specific genetic mutation.
From October 19 to 22, 2025, the Oligo Meeting took place, dedicated to oligonucleotides—used to develop targeted genetic therapies.
SLC6A1 Switzerland was present to represent the SLC6A1 community.
First European SLC6A1symposium, Lisbon, Portugal, 29th of August 2025
The success of our first European SLC6A1 Symposium, which was a sold-out event, exceeded our expectations. Watch videos of our speakers in the research section.
International Epilepsy Congress, Lisbon (Portugal), August 30 – September 3, 2025
We were present throughout the entire International Epilepsy Congress with our SLC6A1 Europe information booth.
In 2025, as already in Rome in 2024, the official Congress program included a 90-minute session entirely dedicated to the SLC6A1 mutation.
The speakers were:
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Lindsay Randall – founder of SLC6A1 Connect UK – Arthur’s Quest (United Kingdom)
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Dennis Lal – geneticist at Cleveland Clinic (USA)
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Katrine Johannesen – neurologist, Danish Epilepsy Centre (Denmark)
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Chris Dulla – neuroscientist, Tufts University (USA)
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Tatiana P. Morais – researcher at the University of Lisbon (Portugal)
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Vincenzo Crunelli – neuroscientist, Cardiff University (United Kingdom)
SLC6A1 Associations in Rome in 2024 – European Epilepsy Congress
We participated with great interest in the European Epilepsy Congress 2024, held in Rome in September 2024.
During the congress, a session dedicated to SLC6A1 was held, representing an important opportunity for scientific updates and exchange between clinicians, researchers, and patient organizations.
The following speakers contributed to the session:
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Katrine Johannessen – Danish Epilepsy Centre (Denmark)
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Susana Boronat – Hospital de la Santa Creu i Sant Pau (Barcelona, Spain)
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Andrea de Colle – SLC6A1 Connect Italia (Italy)
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Ángel Aledo-Serrano – Hospital Ruber Internacional (Madrid, Spain)
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Lindsay Randall – SLC6A1 Connect UK-AQ (Arthur’s Quest) (United Kingdom), founder and CEO
Ascona, June 8, 2025 – SLC6A1 SWITZERLAND was warmly welcomed by the I Mercantini Association during their Svuotacantine Market.
The proceeds from the refreshment stand were generously donated to support the development of the website www.slc6a1switzerland.ch.
We are deeply grateful to Ferdinando Pighi and Suana Ramonda, President and Vice President of I Mercantini, for this generous act of solidarity.
